I think everyone in life realizes a certain amount of pain at some point. Whether it’s physical or emotional, as humans we feel it none-the-less. Soldiers lose their lives in battle, folks are involved in fatal accidents, while others perish at the hands of an illness.
That for me seems to be the hardest to come to grips with. As an adult, I would handle it in my own stubborn way, and live life the best way I could.
When I hear of a child that is dealing with a disease, it slays me! Deeply heartbroken. When I heard about Grace Rose’s fight with Cystic Fibrosis, it inspired me to step back and take a look at my own life and what it means. She lives life to the fullest and doesn’t look back. I think we can all learn from that. Below is an exchange between Grace Rose and her Mother Leah, showing just how special she is…
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The other day Grace Rose, my 7yr old daughter caught me off guard.
She turned to me and asked “Mom if God loves EVERYONE, then why would he give ME CF?”
My response? After a slow pause…(And trying to keep the glass 1/2 full) was:
“God sometimes has to choose special people to send a really important message. He chose you. Remember the little girl we saw last month when we were leaving the hospital? We talked about how she has cancer and the meds she has to take makes her hair fall out. And she’s connected to tubes and doesn’t get to leave the hospital to play with her friends. She has a pretty tough job too. (We always feel fortunate after CF clinics, to be leaving the hospital).”
“Remember mommy’s dear friend Daniel who was taken from us at the age of 28? We have his beautiful artwork all around us? And your friend Olivia’s dad who was healthy and played basketball and for no reason died at dinner last month?”
“There’s no real reason for it other than they were special chosen people to help send this message of how fortunate we are to be healthy + live long. This is why we have these fundraisers – to let as many people know about CF so we can help find a cure! He knew that you were loud enough to help do this
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And now I feel chosen too…at least to help her through it. This night is a lot of fun for us, we’d love for you to join as we truly appreciate your support in helping make CF stand for: Cure Found!
- Leah Bauer, Grace Rose’s Mother.
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Come out and support the fight against this dastardly disease and make “CF” Stand for “CURE FOUND”. Here’s the poster again, and thank you.

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